The Color Between The Lines with Esther Dillard
When Doctors Won't Believe You | Kalynne Wilson on Living With Sickle Cell
EPISODE 18 • SEASON 3 00:14:12
One in 365 Black births in the U.S. comes with a sickle cell diagnosis. Most people who don't have the disease can't describe what a pain crisis actually feels like - and that gap in understanding shapes how patients get treated in the emergency room.
In this conversation, Esther Dillard sits down with Kalynne Wilson: a sickle cell warrior, adult advocate, and award-winning documentary filmmaker who has lived with the disease since birth. Kalynne describes what a pain crisis actually feels like, why adults with sickle cell face suspicion that children don't, and the hardest part of transitioning from pediatric to adult care. She also explains why she chose documentary filmmaking - not a social media campaign - to tell the story of an 11-year-old girl living with the disease, and why blood donation from Black donors is critical to treatment.
Watch Kalynne's documentary, "How the Sickle Shapes" (Ayana's story): https://www.youtube.com/watch?v=R_OA32Mw7NA
Learn more about the Shine the Light on Sickle Cell Foundation: https://wepsicklecell.org/sinerge/shine-the-light/
All audio, artwork, episode descriptions and notes are property of Esther Dillard, for The Color Between The Lines with Esther Dillard, and published with permission by ALIVE Podcast Network.
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